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Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, and attorneys for children with disabilities on the Yellow Pages for Kids for your state.
You will also find special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations, and government programs for children with disabilities.
As
the parent of a child with special educational needs, you represent
your child's interests. You need to learn about your child's disability,
how the disability affects your child, and about appropriate educational
and remediation techniques.
The
groups listed in the Directory of Disabilities Organizations and
Information Groups are an invaluable source of information.
Adaptive
Baseball / Little League Challenger Div.
Samuel D. Ranck
539 US Route 15 Hwy
PO Box 3485
Williamsport, PA 17701-0485
(570) 326-1921 Ext. 254; (570) 326-1074 (fax)
Email: sranck@LittleLeague.org
Web: http://www.littleleague.org
Co-ed program for youth ages 5-21; Little League Baseball's adaptive
division strives to accommodate the needs of every individual child
to promote interpersonal/physical development and fun. A Federal
Non-Profit, partnering with national medical communities for a safe
program.
African-American
Juvenile Justice Project
Sherri Jefferson, Esq.
Post Office Box 2041
Jonesboro, GA 30236
(770) 374-9591
Email: info@aajjp.org
Web: http://www.aajjp.org
Legal advocacy for children. Provide services in child welfare,
education, health, housing and juvenile justice/delinquency.
Alexander
Graham Bell Association for the Deaf and Hard of Hearing
(202) 337-5220; (202) 337-5221 (TTY)
Email: info@agbell.org
Web: www.agbell.org
Alliance
for Technology Access
(800) 455-7970; (415) 455-4575; (415) 455-0491 (TTY)
Email: atainfo@ataccess.org
Web: www.ataccess.org
American
Brain Tumor Association
(847) 827-9910; (800) 886-2282 (Patient Services)
Email: info@abta.org
Web: www.abta.org/
American
Council of the Blind
(800) 424-8666; (202) 467-5081
Email: ncrabb@erols.com
Web: www.acb.org
American
Council on Rural Special Education (ACRES)
(785) 532-2737
Email: acres@ksu.edu
Web: http://www.acres-sped.org/
American
Diabetes Association
Government Affairs and Advocacy Division
1701 N. Beauregard Street
Alexandria, VA 22311
(703) 549-1500 or (800) DIABETES
Web: www.diabetes.org
The American Diabetes Association is committed to ending discrimination
against people with diabetes through its legal advocacy program.
American
Foundation for the Blind (AFB)
(800) 232-5463; (212) 502-7662 (TTY)
Publications available in Spanish
Email: afbinfo@afb.net
Web: www.afb.org
American
Occupational Therapy Association (AOTA)
(301) 652-2682 (Voice)
Web: www.aota.org
American
Physical Therapy Association (APTA)
(800) 999-2782; (703) 684-2782; (703) 683-6748 (TTY)
Email: practice@apta.org
Web: www.apta.org
American
Society for Deaf Children
(800) 942-2732; (717) 334-7922 (V/TTY)
Email: ASDC1@aol.com
Web: www.deafchildren.org
American
Speech-Language-Hearing Association (ASHA)
(800) 498-2071 (V/TTY); (301) 571-0457 (TTY)
Publications available in Spanish; Spanish speaker on staff
Email: actioncenter@asha.org
Web: www.asha.org
American
Therapeutic Recreation Association
(703) 683-9420
Email: atra@atra-tr.org
Web: www.atra-tr.org
Angelman
Syndrome Foundation
(800) 432-6435; (630) 734-9267
Email: asf@adminsys.com
Web: www.angelman.org
Anxiety
Disorders Association of America
(301) 231-9350
Email: AnxDis@adaa.org
Web: www.adaa.org
Aplastic
Anemia & MDS International Foundation
(800) 747-2820; (410) 867-0242
Email: aamdsoffice@aol.com
Web: www.aamds.org
The
Arc (formerly the Association for Retarded Citizens of the U.S.)
(301) 565-3842
Email: Info@thearc.org
Web: www.thearc.org
Asperger
Syndrome Education Network (ASPEN®)
9 Aspen Circle
Edison, NJ 08820
(732) 321-0880
Email: info@aspennj.org
Website www.aspennj.org
Asthma
and Allergy Foundation of America
(800) 727-8462; (202) 466-7643
Email: info@aafa.org
Web: www.aafa.org/
Attention
Deficit Disorders Associations - Southern Region
(281) 897-0982
Email: oflanigan@adda-sr.org
Web: http://www.adda-sr.org/
Attention
Deficit Disorder Resources
Cynthia Hammer
223 Tacoma Av So
Tacoma, WA 98402
(253) 759 5085; (253) 572 3700 (fax)
Email: office@addresources.org
Web: http://www.addresources.org
Quality ADHD information, resources and support provided by a national
non-profit organization
Autism
Society of America
(800) 328-8476; (301) 657-0881
Publications available in Spanish
Web: www.autism-society.org
Brain
Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA. 22102-3816
(800) 444-6443; (703) 761-0750
Email: info@biausa.org
Web: http://www.biausa.org
Visit the web page for contacts to state-based organizations; Publications
available in Spanish.
Center
for Mental Health Services, Knowledge Exchange Network
Publications available in Spanish
(800) 789-2647; (301) 443-9006 (TTY)
Email: ken@mentalhealth.org
Web: www.mentalhealth.org
Child
and Adolescent Bipolar Foundation
820 Davis St., Ste. 520
Evanston, IL 60201
(847) 492-8519; (847) 492-8520 (fax)
Email: cabf@bpkids.org
Web: http://www.bpkids.org
The Child and Adolescent Bipolar Foundation is a web-based non-profit
organization providing information and support for parents of children
and adolescents with bipolar disorder.
Childhood
Apraxia of Speech Association
(412) 343-7102
Email: helpdesk@apraxia-kids.org
Web: http://www.apraxia-kids.org
Children
and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
(800) 233-4050 (To request information packet)
Email: national@chadd.org
Web: www.chadd.org
Children's
Craniofacial Association
(800) 535-3643; (972) 994-9902
Email: contactcca@ccakids.com
Web: www.ccakids.com
Children's
Liver Alliance
(718) 987-6200
Email: Livers4Kids@earthlink.net
Chronic
Fatigue & Immune Dysfunction Syndrome Association
(800) 442-3437; (704) 365-9755
Email: info@cfids.org
Web: www.cfids.org
Cleft
Advocate
(702) 228-8662; (702) 341-5351 (fax)
Email: debbie@cleftadvocate.org
Web: http://www.cleftadvocate.org
Cleft Advocate provides educational and networking opportunities for
cleft lip/palate and other craniofacial patients and their families,
including assistance with insurance issues.
Council for Exceptional Children (CEC)
(703) 620-3660; (703) 264-9446 (TTY)
Email: cec@cec.sped.org
Web: www.cec.sped.org/
Craniofacial
Foundation of America
(800) 418-3223; (423) 778-9192
Email: farmertm@erlanger.org
Cued
language Network of America (CLNA)
P.O. Box 772
Heber City, Utah 84032
(866) 446-3855
Web: http://www.cuedlanguage.org
DAC
(disabled Action committee)
Keith Kessler - Founder
14405 Artery Ln#11
Dale City, VA 22193
(703) 878-1737
Email: DAC4VA@aol.com
Web: http://members.aol.com/DAC4VA/index.html
Disability
and Business Technical Assistance Centers (DBTACs)
(800) 949-4232
Web: http://www.adata.org/dbtac.html
DisAbility.gov
Email: webmaster@disability.gov
Web: http://www.disability.gov/
Easter
Seals-National Office
(800) 221-6827; (312) 726-6200; (312) 726-4258 (TTY)
Email: info@easter-seals.org
Web: www.easter-seals.org
EMPOWER
Colorado
2200 S. Jasmine Street
Denver, CO 80222
(866) 213-4631
Email: info@empowercolorado.com
Web: www.empowercolorado.com
EMPOWER Colorado (Educational Movement: Parents Offering Wisdom Encouragement
& Resources) Offers support, education and advocacy for families
of children and adolescents with mental health needs.
Epilepsy
Foundation-National Office
(800) 332-1000; (301) 459-3700
Publications available in Spanish; Spanish speaker on staff
Email: postmaster@efa.org
Web: www.efa.org
FACES:
The National Craniofacial Association
(800) 332-2372; (423) 266-1632
Email: faces@faces-cranio.org
Web: www.faces-cranio.org
Families
for Early Autism Treatment
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
Email:webmaster@feat.org
Web: www.feat.org
Families
For Hands and Voices
P.O. Box 371926
Denver, CO 80237
(303) 300-9763; (866) 422-0422
Email: parentadvocate@handsandvoices.org
Web: http://www.handsandvoices.org
Family
Village (community of disability-related resources)
Web: www.familyvillage.wisc.edu/
Family
Voices (national coalition for children with special health care
needs)
(888) 835-5669; (505) 867-2368
Email: kidshealth@familyvoices.org
Web:www.familyvoices.org
Father's
Network
(425) 747-4004, ext. 218
Email: jmay@fathersnetwork.org
Web: www.fathersnetwork.org
Federation
of Families for Children's Mental Health
(703) 684-7710
Publications available in Spanish
Email: ffcmh@ffcmh.com
Web: www.ffcmh.org
Foundation
for Ichthyosis & Related Skin Types
Web: http://www.scalyskin.org/
The
Genetic Alliance (formerly the Alliance of Genetic Support Groups)
(800) 336-4363; (202) 966-5557
Email: info@geneticalliance.org
Web: www.geneticalliance.org
Hydrocephalus
Association
(415) 732-7040
Email: hydroassoc@aol.com
Web: www.hydroassoc.org
Independent
Living Research Utilization Project
The Institute for Rehabilitation and Research
(713) 520-0232
Email: ilru@ilru.org
Web: www.ilru.org
Institute
on Independent Living
Email: admin@independentliving.org
Web: http://www.independentliving.org/
International
Dyslexia Association (formerly the Orton Dyslexia Society)
(800) 222-3123; (410) 296-0232
Email: info@interdys.org
Web: www.interdys.org
International
Fibrodysplaisa Ossificans Progressiva Association (IFOPA)
P.O.Box 196217
Winter Springs, FL 32719-6217
Note: This organization is based in FL but has members around the
world.
(407) 365-4194
Email: together@ifopa.org
Web: http://www.ifopa.org/
International
Resource Center for Down Syndrome
(216) 621-5858; (800) 899-3039 (toll-free in OH only)
Email: hf854@cleveland.freenet.edu
International
Rett Syndrome Association
(800) 818-7388; (301) 856-3334
Email: irsa@rettsyndrome.org
Web: www.rettsyndrome.org
IsoDicentric
15, Advovacy, Exchange & Support
18 Kings Road
Canton, MA 02021
(617) 686-8405
Web: http://www.IDIC15.org
Isodicentric 15, abbreviated idic(15), is a chromosome abnormality
which a child is born with extra genetic material; Affects - developmental
disabilities, including cognitive disabilities, autism, and seizure
disorders
Jonah
& The Whale Foundation
Mannie Taimuty-Loomis
P.O. Box 981
Mars, PA 16046
(877) 49-JONAH; (877) 495-6624; (724) 772-4998 (fax)
Email: Info@JTWF.org
Web: http://www.JTWF.org
The foundation provides families with Parent Binders and resource
materials to encourage organization of medical and educational information
for more responsible communication between parties involved.
Learning
Disabilities Association of America (LDA)
(888) 300-6710; (412) 341-1515; (412) 341-8077
Publications available in Spanish
Email: vldanatl@usaor.ne
Web: www.ldanatl.org
Leukemia
& Lymphoma Society (formerly Leukemia Society of America)
(800) 955-4LSA; (212) 573-8484
Email: infocenter@leukemia-lymphoma.org
Web: www.leukemia-lymphoma.org
Little
People of America-National Headquarters
(888) LPA-2001
Spanish speaker on staff
Email: LPADataBase@juno.com
Web: www.lpaonline.org
March
of Dimes Birth Defects Foundation
(914) 428-7100; (888) 663-4637
Publications available in Spanish
Email: resourcecenter@modimes.org
Web: http://www.marchofdimes.org
Muscular
Dystrophy Association (MDA)
(800) 572-1717; (520) 529-2000
Publications available in Spanish
Email: mda@mdausa.org
Web: www.mdausa.org
National
Alliance for the Mentally Ill (NAMI)
(800) 950-6264; (703) 524-7600; (703) 516-7991 (TTY)
Publications available in Spanish
Email: namiofc@aol.com
Web: www.nami.org
National
Association of the Deaf
(301) 587-1788; (301) 587-1789 (TTY)
Email: nadinfo@nad.org
Web: www.nad.org
National
Association of Private Schools for Exceptional Children (NAPSEC)
(202) 408-3338
Email: napsec@aol.com
Web: www.napsec.com
National
Ataxia Foundation
(612) 553-0020
Email: naf@mr.net
Web: www.ataxia.org
National
Attention Deficit Disorder Association
Email: mail@add.org
Web: www.add.org
National
Brain Tumor Foundation
(800) 934-2873; (510) 839-9777
Email: nbtf@braintumor.org
Web: www.braintumor.org
National
Center on Low-Incidence Disabilities at UNC
Sheryl Muir
Campus Box 146, McKee Hall
University of Northern Colorado
Greeley, CO 80639
(800) 395-2693; (970) 351-1061 (fax)
Email: sheryl.muir@unco.edu
Web: http://nclid.unco.edu/newnclid/
The National Center on Low-Incidence Disabilities addresses the
challenges of school-age students who are blind/visually impaired,
deaf/hard of hearing, or have siginificant support needs/cognitive.
National
Center for Learning Disabilities (NCLD)
(212) 545-7510; (888) 575-7373
Web: www.ncld.org
National
Council on Independent Living
(703) 525-3406; (703) 525-4153 (TTY)
Email: ncil@ncil.org
Web: www.ncil.org
National
Cued Speech Association (NCSA)
Information Services - Cued Speech Discovery
(800) 459-3529 (TTY)
Email: CuedSpDisc@aol.com
Web: http://www.cuedspeech.org
National
Disability Rights Network (NDRN)*
* formerly the National Association of Protection & Advocacy Systems
(NAPAS)
900 Second Street, NE, Suite 211
Washington, DC 20002
(202) 408-9514 ext. 122; (202) 408-9520 (fax); (202) 408-9521 (TTY)
Web: http://www.ndrn.org
The National Disability Rights Network (NDRN) is the nonprofit membership
organization for the federally mandated Protection and Advocacy (P&A)
Systems and Client Assistance Programs (CAP) for individuals with
disabilities.
National
Down Syndrome Congress
1370 Center Drive Suite 102
Atlanta, GA 30338
(800) 232-6372; (770) 604-9500; (770) 604-9898 (fax)
Email: info@ndsccenter.org
Web: http://www.ndsccenter.org
Promote the interests of persons with Down syndrome through advocacy,
public awareness and information dissemination on all aspects of Down
syndrome. The NDSC is a not-for-profit organization formed in 1973,
governed by a 22 member Board of Directors, including individuals
with Down syndrome.
National
Down Syndrome Society
(800) 221-4602; (212) 460-9330
Email: info@ndss.org
Web: www.ndss.org
National
Family Association for Deaf-Blind (NFADB)
111 Middle Neck Rd.
Sands Point, NY 11050-1129
(800) 255-0411, ext. 275
Email: NFADB@aol.com
Web: WWW.NFADB.ORG
National
Federation for the Blind
(410) 659-9314
Email: nfb@iam.digex.net
Web: www.nfb.org
National
Fragile X Foundation
(800) 688-8765; (303) 333-6155
Email: natlfx@sprintmail.com
Web: www.nfxf.org
National
Library Service for the Blind & Physically Handicapped
(800) 424-8567; (202) 707-5100
Publications available in Spanish
Email: nls@loc.gov
Web: www.loc.gov/nls
National
Mental Health Association
(800) 969-6642; (703) 684-7722; (800) 433-5959 (TTY)
Publications available in Spanish
Email: nmhainfo@aol.com
Web: www.nmha.org
National
Multiple Sclerosis Society
(800) 344-4867; (212) 986-3240
Email: info@nmss.org
Web: www.nmss.org
National
Neurofibromatosis Foundation
(800) 323-7938; (212) 344-6633
Email: nnff@nf.org
Web: www.nf.org
National
Organization of Parents of Blind Children
Carol Castellano, President
National Federation of the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314; (410) 685-5653 (fax)
Email: carol_castellano@verizon.net
Web: http://www.nfb.org/nopbc
A membership organization of parents working toward a better future
for blind children by promoting blindness skills, fostering self-esteem,
and utilizing blind adult role models.
National
Organization on Fetal Alcohol Syndrome (NOFAS)
(800) 666-6327; (202) 785-4585
Email: nofas@erols.com
Web: www.nofas.org
National
Parent Network on Disabilities
(202) 463-2299 (V/TTY)
Email: npnd@cs.com
National
Parent to Parent Support and Information System, Inc.
(800) 651-1151; (706) 374-3822
Email: nppsis@ellijay.com
National
Reye's Syndrome Foundation
(800) 233-7393; (419) 636-2679
Email: nrsf@reyessyndrome.org
Web: www.reyessyndrome.org
National
Scoliosis Foundation
(800) 673-6922; (781) 341-6333
Email: scoliosis@aol.com
National
Spinal Cord Injury Association
(800) 962-9629; (301) 588-6959
Email: nscia2@aol.com
Web: www.spinalcord.org
National
Stuttering Association
(800) 364-1677; (714) 693-7480
Email: nsastutter@aol.com
Web: www.nsastutter.org
National
Tuberous Sclerosis Association
(800) 225-6872; (301) 459-9888
Email: ntsa@ntsa.org
Web: http://www.tsalliance.org/
Neurofibromatosis,
Inc.
(800) 942-6825; (301) 577-8984
Email: NFInc1@aol.com
Web: www.nfinc.org
Obsessive
Compulsive Foundation, Inc.
(203) 315-2190
Email: info@ocfoundation.org
Web: www.ocfoundation.org
Oregon
Parents United
(541) 389-0004
Email: OPU@peak.org
Web:
www.oregonparentsunited.org
Osteogenesis
Imperfecta Foundation
(800) 981-BONE; (301) 947-0083
Email: bonelink@aol.com
Web: www.oif.org
Parents
Helping Parents: Parent-Directed Family Resource Center for Children
with Special Needs
(408) 727-5775
Publications available in Spanish; Spanish speaker on staff
Email: info@php.com
Web: www.php.com
Parents
of Galactosemic Children, Inc. (PGC)
(775) 626-0885
Web: www.galactosemia.org
Pathways Awareness Foundation
(800) 955-2445; (312) 236-7411 (TTY)
Brochure and video available in Spanish
Web: www.pathwaysawareness.org
Prader-Willi
Syndrome Association
(800) 926-4797; (941) 312-0400
Email: pwsausa@aol.com
Web: www.pwsausa.org
President's
Committee's Job Accommodation Network
(800) 526-7234 (Voice/TTY)
Email: jan@.icdi.wvu.edu
Web: www.jan.wvu.edu
Recording
for the Blind & Dyslexic
20 Roszel Road
Princeton, NJ 08540
(800) 221-4792; (609) 987-8116 (fax)
Email: custserv@rfbd.org
Web: http://www.rfbd.org
Registry
of Interpreters for the Deaf
(301) 608-0050 (V/TTY)
Email: info@rid.org
Web: www.rid.org
Smart
Kids with Learning Disabilities
PO Box 2726
Westport, CT 06880
(203) 226-6831
Email: Info@SmartKidswithLD.org
Web: www.SmartKidswithLD.org
Smart Kids with Learning Disabilities is a non-profit organization
producing a national newsletter for parents of children with LD and
ADHD (mailed to members in 49 states) and maintaining a website at
www.SmartKidswithLD.org
that is recommended by the CCLD. We also offer regional outreach programs.
Special
Olympics International
(202) 628-3630
Publications available in Spanish and French; Spanish & French
speaker on staff
Email: specialolympics@msn.com
Web: www.specialolympics.org/
Specialized
Training of Military Parents (STOMP)
6316 S 12th Street
Tacoma, WA 98465
(800) 572-7368; (253) 565-2266; (253) 566-8052 (fax)
Email: stomp@washingtonpave.com
Web: http://www.stompproject.org
Provides military parents with individual assistance & information
about rights/responsibilities in special education services for their
children located in the United States or overseas. STOMP serves all
military families stationed in the United State and overseas.
Spina
Bifida Association of America
(800) 621-3141; (202) 944-3285
Publications available in Spanish
Email: sbaa@sbaa.org
Web: www.sbaa.org
Stuttering
Foundation of America
3100 Walnut Grove Rd, Suite 603
PO Box 11749
Memphis, TN 38111-0749
(800) 992-9392; (901) 452-7343; (901) 452-3931 (fax)
Email: info@stutteringhelp.org
Web: http://www.stutteringhelp.org
The Foundation provides free online resources to those who stutter
and their families, works towards the prevention and improved treatment
of stuttering, and supports research into the causes of stuttering.
TASH
(formerly The Association for Persons with Severe Handicaps)
(410) 828-8274; (410) 828-1306 (TTY)
Email: info@tash.org
Web: www.tash.org
Technical
Assistance Alliance for Parent Centers (the Alliance)
(888) 248-0822; (952) 838-9000
Spanish speaker on staff
Email: alliance@taalliance.org
Web: www.taalliance.org
Tourette
Syndrome Association
(800) 237-0717; (718) 224-2999
Email: ts@tsa-usa.org
Web: http://tsa-usa.org/
Trace
Research & Development Center
(608) 262-6966; (608) 262-5408 (TTY)
Email: info@trace.wisc.edu
Web: http://trace.wisc.edu/
Uniquely
Gifted
Internet Resources for Gifted/Special Needs Children
Web: http://www.uniquelygifted.org
United Cerebral Palsy Association, Inc.
(202) 776-0406; (800) 872-5827; (202) 973-7197 (TTY)
Publications available in Spanish
Email: ucpnatl@ucpa.org
Web: www.ucpa.org
US
National Easter Seals
230 West Monroe Street, Suite 1800
Chicago, IL 60606
(312) 726-6200; (312) 726-4258 (TTY); (312) 726-1494 (fax); (800)
221-6827
Web: http://www.easter-seals.org/
Williams
Syndrome Association, Inc.
(248) 541-3630
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