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Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, and attorneys for children with disabilities on the Yellow Pages for Kids for your state.
You will also find special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations, and government programs for children with disabilities.
As the parent
of a child with special educational needs, you represent your child's interests.
You need to learn about your child's disability, how the disability affects your
child, and about appropriate educational and remediation techniques.The
groups listed in the Directory of Disabilities Organizations and Information Groups
are an invaluable source of information.
Alexander
Graham Bell Association for the Deaf and Hard of Hearing
(202) 337-5220;
(202) 337-5221 (TTY)
Email: info@agbell.org
Web: www.agbell.org Alliance
for Technology Access
(800) 455-7970; (415) 455-4575; (415) 455-0491 (TTY)
Email: atainfo@ataccess.org
Web:
www.ataccess.org American
Brain Tumor Association
(847) 827-9910; (800) 886-2282 (Patient Services)
Email: info@abta.org
Web: www.abta.org/ American
Council of the Blind
(800) 424-8666; (202) 467-5081
Email: ncrabb@erols.com
Web: www.acb.org American
Council on Rural Special Education (ACRES)
(785) 532-2737
Email: acres@ksu.edu
Web: http://www.acres-sped.org/ American
Diabetes Association
Government Affairs and Advocacy Division
1701
N. Beauregard Street
Alexandria, VA 22311
(703) 549-1500 or (800) DIABETES
Web: www.diabetes.org
The American Diabetes
Association is committed to ending discrimination against people with diabetes
through its legal advocacy program.
American
Foundation for the Blind (AFB)
(800) 232-5463; (212) 502-7662 (TTY)
Publications available in Spanish
Email: afbinfo@afb.net
Web: www.afb.org American
Occupational Therapy Association (AOTA)
(301) 652-2682 (Voice)
Web:
www.aota.org American
Physical Therapy Association (APTA)
(800) 999-2782; (703) 684-2782; (703)
683-6748 (TTY)
Email: practice@apta.org
Web: www.apta.org American
Society for Deaf Children
(800) 942-2732; (717) 334-7922 (V/TTY)
Email:
ASDC1@aol.com
Web: www.deafchildren.org American
Speech-Language-Hearing Association (ASHA)
(800) 498-2071 (V/TTY); (301)
571-0457 (TTY)
Publications available in Spanish; Spanish speaker on staff
Email: actioncenter@asha.org
Web:
www.asha.org American
Therapeutic Recreation Association
(703) 683-9420
Email: atra@atra-tr.org
Web: www.atra-tr.org Angelman
Syndrome Foundation
(800) 432-6435; (630) 734-9267
Email: asf@adminsys.com
Web: www.angelman.org Anxiety
Disorders Association of America
(301) 231-9350
Email: AnxDis@adaa.org
Web: www.adaa.org Aplastic
Anemia & MDS International Foundation
(800) 747-2820; (410) 867-0242
Email: aamdsoffice@aol.com
Web: www.aamds.org The
Arc (formerly the Association for Retarded Citizens of the U.S.)
(301)
565-3842
Email: Info@thearc.org
Web:
www.thearc.org Asperger
Syndrome Education Network (ASPEN®)
9 Aspen Circle
Edison, NJ
08820
(732) 321-0880
Email: info@aspennj.org
Website www.aspennj.org Asthma
and Allergy Foundation of America
(800) 727-8462; (202) 466-7643
Email:
info@aafa.org
Web: www.aafa.org/ Attention
Deficit Disorders Associations - Southern Region
(281) 897-0982
Email:
oflanigan@adda-sr.org
Web: http://www.adda-sr.org/ Attention
Deficit Disorder Resources
Cynthia Hammer
223 Tacoma Av So
Tacoma,
WA 98402
(253) 759 5085; (253) 572 3700 (fax)
Email: office@addresources.org
Web:
http://www.addresources.org
Quality
ADHD information, resources and support provided by a national non-profit organization Autism
Society of America
(800) 328-8476; (301) 657-0881
Publications available in Spanish
Web: www.autism-society.org Brain
Injury Association of America
8201 Greensboro Drive, Suite 611
McLean,
VA. 22102-3816
(800) 444-6443; (703) 761-0750
Email: info@biausa.org
Web:
http://www.biausa.org
Visit the web page
for contacts to state-based organizations; Publications available in Spanish. Center
for Mental Health Services, Knowledge Exchange Network
Publications available
in Spanish
(800) 789-2647; (301) 443-9006 (TTY)
Email: ken@mentalhealth.org
Web: www.mentalhealth.org
Child and Adolescent
Bipolar Foundation
1000 Skokie Blvd. Suite 570
Wilmette, IL 60091
(847) 256-8525; (847) 920-9310; (847) 920-9498 (fax)
Email: nschiman@bpkids.org
Web: http://www.bpkids.org
Childhood
Apraxia of Speech Association
(412) 343-7102
Email: helpdesk@apraxia-kids.org
Web: http://www.apraxia-kids.org Children
and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
(800)
233-4050 (To request information packet)
Email: national@chadd.org
Web: www.chadd.org Children's
Craniofacial Association
(800) 535-3643; (972) 994-9902
Email: contactcca@ccakids.com
Web: www.ccakids.com Children's
Liver Alliance
(718) 987-6200
Email: Livers4Kids@earthlink.net Chronic
Fatigue & Immune Dysfunction Syndrome Association
(800) 442-3437;
(704) 365-9755
Email: info@cfids.org
Web: www.cfids.org Cleft
Advocate
(702) 228-8662; (702) 341-5351 (fax)
Email: debbie@cleftadvocate.org
Web: http://www.cleftadvocate.org
Cleft Advocate provides educational and networking opportunities for cleft lip/palate
and other craniofacial patients and their families, including assistance with
insurance issues.
Council for Exceptional Children (CEC)
(703) 620-3660; (703) 264-9446
(TTY)
Email: cec@cec.sped.org
Web:
www.cec.sped.org/ Craniofacial
Foundation of America
(800) 418-3223; (423) 778-9192
Email: farmertm@erlanger.org
Cued
language Network of America (CLNA)
P.O. Box 772
Heber City, Utah 84032
(866) 446-3855
Web: http://www.cuedlanguage.org
DAC
(disabled Action committee)
Keith Kessler - Founder
14405 Artery
Ln#11
Dale City, VA 22193
(703) 878-1737
Email: DAC4VA@aol.com
Web: http://members.aol.com/DAC4VA/index.html
Disability and Business
Technical Assistance Centers (DBTACs)
(800) 949-4232
Web: http://www.adata.org/dbtac.html DisAbility.gov
Email: webmaster@disability.gov
Web: http://www.disability.gov/ Easter
Seals-National Office
(800) 221-6827; (312) 726-6200;
(312) 726-4258 (TTY)
Email: info@easter-seals.org
Web: www.easter-seals.org EMPOWER
Colorado
2200 S. Jasmine Street
Denver, CO 80222
(866) 213-4631
Email: info@empowercolorado.com
Web: www.empowercolorado.com
EMPOWER Colorado (Educational Movement: Parents Offering Wisdom Encouragement
& Resources) Offers support, education and advocacy for families of children
and adolescents with mental health needs.
Epilepsy
Foundation-National Office
(800) 332-1000; (301) 459-3700
Publications
available in Spanish; Spanish speaker on staff
Email: postmaster@efa.org
Web: www.efa.org FACES:
The National Craniofacial Association
(800) 332-2372; (423) 266-1632
Email: faces@faces-cranio.org
Web: www.faces-cranio.org Families
for Early Autism Treatment
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
Email:webmaster@feat.org
Web: www.feat.org Families
For Hands and Voices
P.O. Box 371926
Denver, CO 80237
(303) 300-9763;
(866) 422-0422
Email: parentadvocate@handsandvoices.org
Web: http://www.handsandvoices.org
Family
Village (community of disability-related resources)
Web: www.familyvillage.wisc.edu/ Family
Voices (national coalition for children with special health care needs)
(888) 835-5669; (505) 867-2368
Email: kidshealth@familyvoices.org
Web:www.familyvoices.org Father's
Network
(425) 747-4004, ext. 218
Email: jmay@fathersnetwork.org
Web: www.fathersnetwork.org Federation
of Families for Children's Mental Health
(703) 684-7710
Publications
available in Spanish
Email: ffcmh@ffcmh.com
Web: www.ffcmh.org Foundation
for Ichthyosis & Related Skin Types
Web: http://www.scalyskin.org/ The
Genetic Alliance (formerly the Alliance of Genetic Support Groups)
(800)
336-4363; (202) 966-5557
Email: info@geneticalliance.org
Web: www.geneticalliance.org Hydrocephalus
Association
(415) 732-7040
Email: hydroassoc@aol.com
Web: www.hydroassoc.org Independent
Living Research Utilization Project
The Institute for Rehabilitation and
Research
(713) 520-0232
Email: ilru@ilru.org
Web: www.ilru.org Institute
on Independent Living
Email: admin@independentliving.org
Web: http://www.independentliving.org/ International
Dyslexia Association (formerly the Orton Dyslexia Society)
(800) 222-3123;
(410) 296-0232
Email: info@interdys.org
Web: www.interdys.org International
Fibrodysplaisa Ossificans Progressiva Association (IFOPA)
P.O.Box 196217
Winter Springs, FL 32719-6217
Note: This organization is based in FL but has
members around the world.
(407) 365-4194
Email: together@ifopa.org
Web:
http://www.ifopa.org/ International
Resource Center for Down Syndrome
(216) 621-5858; (800) 899-3039 (toll-free
in OH only)
Email: hf854@cleveland.freenet.edu International
Rett Syndrome Association
(800) 818-7388; (301) 856-3334
Email: irsa@rettsyndrome.org
Web: www.rettsyndrome.org
IsoDicentric
15, Advovacy, Exchange & Support
18 Kings Road
Canton, MA 02021
(617) 686-8405
Web: http://www.IDIC15.org
Isodicentric 15, abbreviated idic(15), is a chromosome abnormality
which a child is born with extra genetic material; Affects - developmental
disabilities, including cognitive disabilities, autism, and seizure
disorders
Jonah
& The Whale Foundation
Mannie Taimuty-Loomis
P.O. Box 981
Mars, PA 16046
(877) 49-JONAH; (877) 495-6624; (724) 772-4998 (fax)
Email: Info@JTWF.org
Web: http://www.JTWF.org
The foundation provides families with Parent Binders and resource
materials to encourage organization of medical and educational information
for more responsible communication between parties involved.
Learning
Disabilities Association of America (LDA)
(888)
300-6710; (412) 341-1515; (412) 341-8077
Publications available in Spanish
Email: vldanatl@usaor.ne
Web: www.ldanatl.org Leukemia
& Lymphoma Society (formerly Leukemia Society of America)
(800) 955-4LSA;
(212) 573-8484
Email: infocenter@leukemia-lymphoma.org
Web: www.leukemia-lymphoma.org Little
People of America-National Headquarters
(888) LPA-2001
Spanish speaker
on staff
Email: LPADataBase@juno.com
Web: www.lpaonline.org March
of Dimes Birth Defects Foundation
(914) 428-7100; (888) 663-4637
Publications
available in Spanish
Email: resourcecenter@modimes.org
Web: http://www.marchofdimes.org Muscular
Dystrophy Association (MDA)
(800) 572-1717; (520) 529-2000
Publications
available in Spanish
Email: mda@mdausa.org
Web: www.mdausa.org National
Alliance for the Mentally Ill (NAMI)
(800) 950-6264; (703) 524-7600; (703)
516-7991 (TTY)
Publications available in Spanish
Email: namiofc@aol.com
Web: www.nami.org National
Association of the Deaf
(301) 587-1788; (301) 587-1789 (TTY)
Email:
nadinfo@nad.org
Web: www.nad.org National
Association of Private Schools for Exceptional Children (NAPSEC)
(202)
408-3338
Email: napsec@aol.com
Web:
www.napsec.com National
Ataxia Foundation
(612) 553-0020
Email: naf@mr.net
Web: www.ataxia.org National
Attention Deficit Disorder Association
Email: mail@add.org
Web: www.add.org National
Brain Tumor Foundation
(800) 934-2873; (510) 839-9777
Email: nbtf@braintumor.org
Web: www.braintumor.org National
Center on Low-Incidence Disabilities at UNC
Sheryl Muir
Campus Box
146, McKee Hall
University of Northern Colorado
Greeley, CO 80639
(800) 395-2693; (970) 351-1061 (fax)
Email: sheryl.muir@unco.edu
Web: http://nclid.unco.edu/newnclid/
The National
Center on Low-Incidence Disabilities addresses the challenges of school-age students
who are blind/visually impaired, deaf/hard of hearing, or have siginificant support
needs/cognitive. National
Center for Learning Disabilities (NCLD)
(212) 545-7510; (888) 575-7373
Web: www.ncld.org National
Council on Independent Living
(703) 525-3406; (703)
525-4153 (TTY)
Email: ncil@ncil.org
Web: www.ncil.org National
Cued Speech Association (NCSA)
Information Services - Cued Speech Discovery
(800) 459-3529 (TTY)
Email: CuedSpDisc@aol.com
Web: http://www.cuedspeech.org National
Disability Rights Network (NDRN)*
* formerly the National Association
of Protection & Advocacy Systems (NAPAS)
900 Second Street, NE, Suite
211
Washington, DC 20002
(202) 408-9514 ext. 122; (202) 408-9520 (fax);
(202) 408-9521 (TTY)
Web: http://www.ndrn.org
The National Disability Rights Network (NDRN) is the nonprofit membership organization
for the federally mandated Protection and Advocacy (P&A) Systems and Client
Assistance Programs (CAP) for individuals with disabilities. National
Down Syndrome Congress
1370 Center Drive Suite 102
Atlanta, GA 30338
(800) 232-6372; (770) 604-9500; (770) 604-9898 (fax)
Email: info@ndsccenter.org
Web: http://www.ndsccenter.org
Promote
the interests of persons with Down syndrome through advocacy, public awareness
and information dissemination on all aspects of Down syndrome. The NDSC is a not-for-profit
organization formed in 1973, governed by a 22 member Board of Directors, including
individuals with Down syndrome. National
Down Syndrome Society
(800) 221-4602; (212) 460-9330
Email: info@ndss.org
Web: www.ndss.org National
Family Association for Deaf-Blind (NFADB)
111 Middle Neck Rd.
Sands
Point, NY 11050-1129
(800) 255-0411, ext. 275
Email: NFADB@aol.com
Web: WWW.NFADB.ORG
National
Federation for the Blind
(410) 659-9314
Email: nfb@iam.digex.net
Web: www.nfb.org National
Fragile X Foundation
(800) 688-8765; (303) 333-6155
Email: natlfx@sprintmail.com
Web: www.nfxf.org National
Library Service for the Blind & Physically Handicapped
(800) 424-8567;
(202) 707-5100
Publications available in Spanish
Email: nls@loc.gov
Web: www.loc.gov/nls National
Mental Health Association
(800) 969-6642; (703) 684-7722; (800) 433-5959
(TTY)
Publications available in Spanish
Email: nmhainfo@aol.com
Web: www.nmha.org National
Multiple Sclerosis Society
(800) 344-4867; (212) 986-3240
Email: info@nmss.org
Web: www.nmss.org National
Neurofibromatosis Foundation
(800) 323-7938; (212) 344-6633
Email:
nnff@nf.org
Web: www.nf.org National
Organization on Fetal Alcohol Syndrome (NOFAS)
(800) 666-6327; (202) 785-4585
Email: nofas@erols.com
Web: www.nofas.org National
Parent Network on Disabilities
(202) 463-2299 (V/TTY)
Email: npnd@cs.com
National
Parent to Parent Support and Information System, Inc.
(800) 651-1151;
(706) 374-3822
Email: nppsis@ellijay.com
National
Reye's Syndrome Foundation
(800) 233-7393; (419) 636-2679
Email: nrsf@reyessyndrome.org
Web: www.reyessyndrome.org National
Scoliosis Foundation
(800) 673-6922; (781) 341-6333
Email: scoliosis@aol.com National
Spinal Cord Injury Association
(800) 962-9629; (301) 588-6959
Email:
nscia2@aol.com
Web: www.spinalcord.org National
Stuttering Association
(800) 364-1677; (714) 693-7480
Email: nsastutter@aol.com
Web: www.nsastutter.org National
Tuberous Sclerosis Association
(800) 225-6872; (301) 459-9888
Email:
ntsa@ntsa.org
Web: http://www.tsalliance.org/ Neurofibromatosis,
Inc.
(800) 942-6825; (301) 577-8984
Email: NFInc1@aol.com
Web: www.nfinc.org Obsessive
Compulsive Foundation, Inc.
(203) 315-2190
Email: info@ocfoundation.org
Web: www.ocfoundation.org Oregon
Parents United
(541) 389-0004
Email: OPU@peak.org
Web:
www.oregonparentsunited.org Osteogenesis
Imperfecta Foundation
(800) 981-BONE; (301) 947-0083
Email: bonelink@aol.com
Web: www.oif.org Parents
Helping Parents: Parent-Directed Family Resource Center for Children with Special
Needs
(408) 727-5775
Publications available in Spanish; Spanish speaker
on staff
Email: info@php.com
Web: www.php.com Parents
of Galactosemic Children, Inc. (PGC)
(775) 626-0885
Web: www.galactosemia.org
Pathways
Awareness Foundation
(800) 955-2445; (312) 236-7411 (TTY)
Brochure
and video available in Spanish
Web: www.pathwaysawareness.org Prader-Willi
Syndrome Association
(800) 926-4797; (941) 312-0400
Email: pwsausa@aol.com
Web: www.pwsausa.org President's
Committee's Job Accommodation Network
(800) 526-7234 (Voice/TTY)
Email:
jan@.icdi.wvu.edu
Web: www.jan.wvu.edu Recording
for the Blind & Dyslexic
20 Roszel Road
Princeton, NJ 08540
(800) 221-4792; (609) 987-8116 (fax)
Email: custserv@rfbd.org
Web: http://www.rfbd.org Registry
of Interpreters for the Deaf
(301) 608-0050 (V/TTY)
Email: info@rid.org
Web: www.rid.org Smart
Kids with Learning Disabilities
PO Box 2726
Westport, CT 06880
(203) 226-6831
Email: Info@SmartKidswithLD.org
Web: www.SmartKidswithLD.org
Smart Kids with Learning Disabilities is a non-profit organization producing a
national newsletter for parents of children with LD and ADHD (mailed to members
in 49 states) and maintaining a website at www.SmartKidswithLD.org
that is recommended by the CCLD. We also offer regional outreach programs.
Special
Olympics International
(202) 628-3630
Publications available in Spanish and French; Spanish & French
speaker on staff
Email: specialolympics@msn.com
Web: www.specialolympics.org/
Specialized
Training of Military Parents (STOMP)
6316 S 12th Street
Tacoma, WA 98465
(800) 572-7368; (253) 565-2266; (253) 566-8052 (fax)
Email: stomp@washingtonpave.com
Web: http://www.stompproject.org
Provides military parents with individual assistance & information
about rights/responsibilities in special education services for their
children located in the United States or overseas. STOMP serves all
military families stationed in the United State and overseas.
Spina
Bifida Association of America
(800) 621-3141; (202) 944-3285
Publications
available in Spanish
Email: sbaa@sbaa.org
Web: www.sbaa.org Stuttering
Foundation of America
3100 Walnut Grove Rd, Suite 603
PO Box 11749
Memphis,
TN 38111-0749
(800) 992-9392; (901) 452-7343; (901) 452-3931 (fax)
Email:
info@stutteringhelp.org
Web:
http://www.stutteringhelp.org
The
Foundation provides free online resources to those who stutter and their families,
works towards the prevention and improved treatment of stuttering, and supports
research into the causes of stuttering. TASH
(formerly The Association for Persons with Severe Handicaps)
(410) 828-8274;
(410) 828-1306 (TTY)
Email: info@tash.org
Web: www.tash.org Technical
Assistance Alliance for Parent Centers (the Alliance)
(888) 248-0822;
(952) 838-9000
Spanish speaker on staff
Email: alliance@taalliance.org
Web: www.taalliance.org Tourette
Syndrome Association
(800) 237-0717; (718) 224-2999
Email: ts@tsa-usa.org
Web: http://tsa-usa.org/ Trace
Research & Development Center
(608) 262-6966; (608) 262-5408 (TTY)
Email: info@trace.wisc.edu
Web: http://trace.wisc.edu/ Uniquely
Gifted
Internet Resources for Gifted/Special Needs Children
Web:
http://www.uniquelygifted.org
United
Cerebral Palsy Association, Inc.
(202) 776-0406; (800) 872-5827; (202)
973-7197 (TTY)
Publications available in Spanish
Email: ucpnatl@ucpa.org
Web: www.ucpa.org US
National Easter Seals
230 West Monroe Street, Suite 1800
Chicago,
IL 60606
(312) 726-6200; (312) 726-4258 (TTY); (312) 726-1494 (fax); (800)
221-6827
Web: http://www.easter-seals.org/ Williams
Syndrome Association, Inc.
(248) 541-3630
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